"My name is Kim & I live in York, PA. I was diagnosed with RSD/CRPS in May of 2009 (this year), after a long bout with back problems. I had a spinal decompression with fusion in Oct. 2008 and in January . . ." more
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so this is what depression feels like
by Jeanette burkholder
May 12, 2009 8:00PM EDT | rating: 10 | comments: 5 Recent Videos
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![]() Jun 20, 2009 2:01AM EDT
Lune Wolfsong commented on a post "The medical situation in this country is outrageous. I hope you're able to get some relief soon." more Jun 18, 2009 2:35PM EDT
rainne chandler commented on a post "i am so sorry" more May 13, 2009 3:58PM EDT
Eileen C. commented on a photo by Jeanette burkholder Conversation Space
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Samantha B.,
Apr 25, 2009, 8:00PM EDT
Another good site, is `http://butyoudontlooksick.com/ '
There are some good stories, and some inspirational ones, and nice people more than happy to answer questions and get in contact. It's nice to know you're not alone out there (even if you wouldn't wish your pain on any one else) .
Samantha B.,
Apr 25, 2009, 7:55PM EDT
I am new to this group, but I thought I would say hello to fellow pain sufferers, and introduce myself. I am Sam, and I have been suffering from Chronic pain since I was 10. I am now 20, and little has changed. I have been to several hospitals, and through several tests, and instead of getting better, things are getting significantly worse. What is annoying, is that when you see a new doctor, they don`t have the background, nor have they known what you were like when pain wasn`t overtaking you, so instead of focusing on the main issues, they focus on what `must`be going on, and so forth. When things first began, I was told that things would go away after a year. A year became five, and the doctors went on to assume that it was just hyper sensitivity, then they finally started to take it seriously, but didn`t know what to diagnose, so for all those times, it was just `severe chronic pain condition`. Not to mention the meds being thrown at me. Anyway, long story short, my case has been mishandled, but never worse than this past year. This past hear has been hell, and completely disheartening. I nearly completely failed out of my 3rd year at University, and have destroyed a lot of my (already limited) social relationships, as well as my first non-abusive relationship. I finally found someone I felt safe with, and it proved to be just too much to handle.
So, I guess this group stood out to me because I don`t want to give up, and through others` stories, maybe I can find some hope. Even some ideas to approach to reduce the pain. So far, they have diagnosed me (January 2009) and applied terms to my condition, which makes it a bit easier to have the other doctors take it seriously; Traumatic Digital Neuropathy, PTSD, Chronic fatigue, pain-induced insomnia (I never hit REM sleep, according to the latest sleep study.) Depression, and so on. Well, I will take my leave, as if I don`t get back to my essay, then I will indeed be kneeling to defeat rather than going down kicking for this year. Ciao... |
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P.A.I.N. (Pain Awareness International Network)
Location: Where it Hurts, OH
Created: Feb 07, 2009
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The Pain Awareness International Network (aka P.A.I.N.) is a group specifically designed for those who suffer with any type of chronic pain, where it's members can gather to educate, promote awareness, offer support, and get tips on how to manage . . .
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![]() pain (6)
chronic pain (1)
horrible pain (1)
intense pain (1)
managed pain (1)
unmanaged pain (1)
controlled pain (1)
worst pain (1)
bad pain (1)
lots of pain (1)
rsd (1)
crps (1)
unexplained pain (1)
pain awareness (1)
crps awareness (1)
crps support (1)
pain (6)
chronic pain (1)
horrible pain (1)
intense pain (1)
managed pain (1)
unmanaged pain (1)
controlled pain (1)
Group Stats
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P.A.I.N. (Pain Awareness International Network) has 12 members.
0 posts, 0 photos and 0 videos were shared in the past week.
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